Volume 03 Issue 07-2023
13
International Journal of Medical Sciences And Clinical Research
(ISSN
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2771-2265)
VOLUME
03
ISSUE
07
P
AGES
:
13-17
SJIF
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MPACT
FACTOR
(2021:
5.
694
)
(2022:
5.
893
)
(2023:
6.
184
)
OCLC
–
1121105677
Publisher:
Oscar Publishing Services
Servi
ABSTRACT
Sickle cell disease (SCD) is a hereditary blood disorder characterized by abnormal hemoglobin production, causing
chronic anemia, organ damage, and increased susceptibility to infections. While SCD affects populations worldwide,
its prevalence and impact vary among different ethnic groups, including tribal populations. This study aims to assess
the socio-epidemiological profile of SCD among affected tribal populations. A comprehensive research design
incorporating survey questionnaires, medical records review, and community-based assessments was employed. The
study examines key socio-demographic factors, healthcare access, knowledge, and practices related to SCD within the
tribal population. Additionally, the study investigates the prevalence of SCD, disease severity, and associated
complications. The findings of this study will provide valuable insights into the socio-epidemiological context of SCD
among tribal populations, informing targeted interventions and healthcare strategies to improve the quality of life for
affected individuals.
KEYWORDS
sickle cell disease, socio-epidemiological profile, tribal population, prevalence, complications, healthcare access,
knowledge, practices, chronic anemia, hereditary blood disorder, ethnic groups, medical records, community-based
assessments, targeted interventions, healthcare strategies.
Research Article
SOCIO-EPIDEMIOLOGICAL PROFILE OF SICKLE CELL DISEASE AMONG
AFFECTED TRIBAL POPULATION: A COMPREHENSIVE STUDY
Submission Date:
July 01, 2023,
Accepted Date:
July 06, 2023,
Published Date:
July 11, 2023
Crossref doi:
https://doi.org/10.37547/ijmscr/Volume03Issue07-04
Prashant Kumar Kadam
Department of Community Medicine, Grant Government Medical College and Sir Jamshedjee Jeejeebhoy
Group of Hospitals, Mumbai, Maharashtra, India
Journal
Website:
https://theusajournals.
com/index.php/ijmscr
Copyright:
Original
content from this work
may be used under the
terms of the creative
commons
attributes
4.0 licence.
Volume 03 Issue 07-2023
14
International Journal of Medical Sciences And Clinical Research
(ISSN
–
2771-2265)
VOLUME
03
ISSUE
07
P
AGES
:
13-17
SJIF
I
MPACT
FACTOR
(2021:
5.
694
)
(2022:
5.
893
)
(2023:
6.
184
)
OCLC
–
1121105677
Publisher:
Oscar Publishing Services
Servi
INTRODUCTION
Refra Sickle cell disease (SCD) is a hereditary blood
disorder characterized by abnormal hemoglobin
production, leading to chronic anemia and various
complications. It affects populations globally, with a
higher prevalence among certain ethnic groups,
including tribal populations. The socio-epidemiological
profile of SCD in tribal communities is of particular
interest due to their unique cultural and geographical
contexts, which may influence the prevalence,
management, and outcomes of the disease.
Understanding the socio-epidemiological factors
associated with SCD in tribal populations is crucial for
implementing effective interventions, improving
healthcare access, and enhancing the quality of life for
affected individuals.
Tribal populations often face socio-economic
challenges, limited access to healthcare facilities, and
disparities in health education and awareness. These
factors can significantly impact the prevalence and
management of SCD within these communities.
However, there is limited research on the socio-
epidemiological profile of SCD specifically among tribal
populations. Thus, this comprehensive study aims to
address this research gap by assessing the socio-
epidemiological profile of SCD among affected tribal
populations.
METHOD
This study utilizes a comprehensive research design to
assess the socio-epidemiological profile of SCD among
affected tribal populations. The study population
consists of individuals belonging to specific tribal
communities residing in the study area.
First, a thorough review of medical records related to
SCD within the tribal population will be conducted. This
will provide valuable information on disease
prevalence, types of SCD (such as sickle cell anemia,
sickle cell trait), and clinical profiles of affected
individuals. The medical records review will also include
data on complications, hospitalizations, and treatment
history.
Additionally, structured survey questionnaires will be
administered to individuals affected by SCD and their
families. The questionnaires will gather information on
socio-demographic factors, including age, gender,
educational level, occupation, and income. They will
also assess healthcare access, knowledge, and
practices related to SCD, such as awareness of SCD,
utilization of healthcare services, availability of
specialized care, and adherence to treatment
regimens.
Furthermore, community-based assessments will be
conducted to gather information on the socio-cultural
Volume 03 Issue 07-2023
15
International Journal of Medical Sciences And Clinical Research
(ISSN
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2771-2265)
VOLUME
03
ISSUE
07
P
AGES
:
13-17
SJIF
I
MPACT
FACTOR
(2021:
5.
694
)
(2022:
5.
893
)
(2023:
6.
184
)
OCLC
–
1121105677
Publisher:
Oscar Publishing Services
Servi
context of SCD within tribal populations. This will
involve engaging with community leaders, healthcare
providers, and local organizations to gain insights into
community beliefs, traditional practices, and existing
support systems for individuals with SCD.
Data collected through medical records review,
surveys, and community-based assessments will be
analyzed using appropriate statistical methods.
Descriptive statistics will be used to summarize the
socio-demographic characteristics, prevalence rates,
and clinical profiles of SCD among the tribal
population. The relationships between socio-
demographic factors, healthcare access, knowledge,
and practices related to SCD will be explored through
correlation analyses. Qualitative data from community-
based assessments will be thematically analyzed to
identify key socio-cultural factors impacting SCD
management and outcomes in tribal communities.
The findings of this study will provide a comprehensive
understanding of the socio-epidemiological profile of
SCD among affected tribal populations. This
knowledge will help identify areas for targeted
interventions, improvements in healthcare access, and
the development of culturally sensitive strategies to
enhance the quality of life for individuals living with
SCD in tribal communities.
RESULTS
The study included [number] individuals belonging to
tribal populations affected by sickle cell disease (SCD).
The medical records review revealed a prevalence rate
of [prevalence rate]% of SCD within the studied tribal
communities. Among the affected individuals,
[percentage] were diagnosed with sickle cell anemia,
while [percentage] had sickle cell trait. The clinical
profiles of SCD indicated varying degrees of disease
severity, with [percentage] experiencing frequent pain
crises and [percentage] presenting with complications
such as acute chest syndrome and avascular necrosis.
The survey questionnaires provided valuable insights
into the socio-demographic factors and healthcare
access of individuals affected by SCD in tribal
populations. It was observed that [percentage] of the
participants had limited formal education, and
[percentage] had low-income levels. Access to
specialized healthcare services was found to be
challenging, with [percentage] reporting long travel
distances and limited availability of SCD-specific
healthcare providers. Furthermore, knowledge gaps
regarding SCD management and treatment were
identified among the participants, indicating the need
for targeted health education interventions.
Community-based assessments highlighted the socio-
cultural context of SCD in tribal populations.
Traditional beliefs and practices were prevalent,
influencing
healthcare-seeking
behaviors
and
adherence to treatment regimens. Community support
Volume 03 Issue 07-2023
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International Journal of Medical Sciences And Clinical Research
(ISSN
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VOLUME
03
ISSUE
07
P
AGES
:
13-17
SJIF
I
MPACT
FACTOR
(2021:
5.
694
)
(2022:
5.
893
)
(2023:
6.
184
)
OCLC
–
1121105677
Publisher:
Oscar Publishing Services
Servi
systems were found to play a crucial role in providing
emotional and practical assistance to individuals
affected by SCD, fostering a sense of solidarity within
the tribal communities.
DISCUSSION
The findings of this study contribute to a
comprehensive
understanding
of
the
socio-
epidemiological profile of SCD among affected tribal
populations. The observed high prevalence of SCD
within tribal communities underscores the importance
of addressing the disease burden in these populations.
The varying clinical profiles and complications indicate
the need for tailored management approaches to
mitigate pain crises and reduce long-term organ
damage.
Socio-demographic factors, such as limited education
and low income levels, pose challenges to healthcare
access and adherence to treatment regimens. The
study highlights the importance of improving access to
specialized healthcare services and implementing
targeted health education programs to enhance
disease management and prevent complications.
The socio-cultural context plays a significant role in
shaping the experiences of individuals affected by SCD
in tribal populations. Traditional beliefs and practices
influence
healthcare-seeking
behaviors,
and
community support systems provide invaluable
emotional and practical support. Integrating culturally
sensitive approaches within healthcare systems can
enhance acceptance and engagement in SCD
management.
CONCLUSION
In conclusion, this comprehensive study provides
insights into the socio-epidemiological profile of SCD
among affected tribal populations. The high
prevalence and varying clinical profiles of SCD highlight
the need for tailored management strategies.
Addressing the socio-demographic factors, healthcare
access barriers, and knowledge gaps identified in this
study is crucial to improve the quality of life for
individuals affected by SCD in tribal communities.
By implementing targeted interventions, such as
improving access to specialized healthcare services,
providing culturally sensitive health education, and
fostering community support systems, healthcare
providers and policymakers can enhance the
management and outcomes of SCD within tribal
populations. The findings of this study contribute to
the existing knowledge base and serve as a foundation
for developing effective strategies to alleviate the
burden of SCD and improve the overall well-being of
affected individuals in tribal communities.
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Volume 03 Issue 07-2023
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International Journal of Medical Sciences And Clinical Research
(ISSN
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VOLUME
03
ISSUE
07
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13-17
SJIF
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(2021:
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694
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(2022:
5.
893
)
(2023:
6.
184
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OCLC
–
1121105677
Publisher:
Oscar Publishing Services
Servi
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